Thursday, February 19, 2009

1 Week Old

She loves her tub.

Monday, February 16, 2009

2 Days Old

Missing Parts
by Kris Heims
God looked down, another child complete,
A smile so perfect, a temper so sweet.
But baby looked and some parts were gone,
Did God mess up and make me wrong?
God just looked at this perfect child,
He explained Himself as He just smiled.
"If I'd taken time to make that part,
you wouldn't be such a work of art.
I would not have had time to make that smile,
To list your talents would last a mile.
Your sense of humor, that belly laugh,
Where are these parts, you have to ask?
You are so lucky, these gifts of gold,
Those missing parts are mine to hold.
Forever they'll be, close to my heart,
So as you live, we are never apart.
Each time I move, you'll be on my mind,
You special child, you are quite the find!
So do not miss those parts, you see,
They will always be safe and sound with me."

Sunday, February 15, 2009

Meet Lauren Leigh

I'm writing this entry as an introduction to Lauren's blog. It's actually now May. I've been blogging in "real time" since April. Before that, I was copying and pasting in e-mails that I had sent out to family and friends to keep everyone updated. Our family has expressed their appreciation for the e-mails and having all the tremendous amounts of information in writing. So we decided on this blog as a way of keeping everyone in the loop. Anyway...

Meet Lauren Leigh. She's our beautiful baby girl born on Valentine's Day and probably one of the most anticipated babies EVER. Lauren is our first baby and the first grandchild on both her mom and dad's sides of the family. Her first name is after my dad's middle name, Loren. And her middle name is after Steve's dad's middle name, Lee.

When Lauren was born, we saw that she had what looked like any other cute little baby foot, except it was made for just three toes. In all the excitement of finally having her here with us, we didn't think too much of it at first. Her pediatrician came in the next morning and thought her foot looked normal otherwise but wanted to have x-rays done to make sure. She also thought that the leg on that side looked like it might be slightly shorter than the other one. The x-ray results came back that evening and we were told that Lauren's leg was normal but that she was missing a bone in her ankle.

At this point, our biggest worry was that our little girl wouldn't be able to walk. In the next few weeks, we learn that she would indeed be able to walk, but also find out the devastating news that she has a rare condition called fibular hemimelia. We were also soon to learn that fibular hemimelia comes with two options, a quick road to amputation or a long difficult road of lengthening and ankle reconstruction.

It's been very bitter-sweet, holding our beautiful new baby that we love so much in our arms, but with these new words, "fibular hemimelia", and the decisions that come with them weighing heavily on our minds.